Here are a few links to my favorite good causes and some HemoStuff too. Please note that I am NOT being compenstated for sharing any of the information here.
NovoSeven RT - This is listed for obvious reasons. If you use NovoSeven RT I highly recommend their SevenSecure program. It's a blessing.
Click Here if you want to learn about Factor VII Deficiency and other bleeding disorders too!
First Step forum - If you want to get connected with other newly diagnosed families. Lots of helpful HemoMoms on there.
LadyBugs Foundation - An organization devoted to supporting women with bleeding disorders. Niki loves her Gramma B. :)
Victory for Women - Learn about NHF's "Victory for Women" initiative
http://hemaware.org/women/women%27s-bleeding-disorders/victory-for-women
HemAware Magazine - The Bleeding Disorders Magazine.
http://www.differentdream.com/ - An awesome resource for those of you raising children with special needs. Jolene Philo is a gem of a woman!
There's an app for everything. Here are a few FREE apps that I use to keep our family's medications organized.
http://www.livingwithhemophilia.com/webapp/livingfit/articles/factortrack-mobile-app.jsp - An very powerful app that I use to log Niki's infusions.
http://personalcaregiver.com/ - Useful of anyone who manages multiple medications and dosing schedules. It even alerts you when it's time to order refills.
Here are a few Good Causes that I hold near and dear to my heart. :)
Want to help raise awareness for bleeding disorders?
Join a Hemophilia Walk
Want to be a Blood Hero?
Donate blood in memory of Ethan!
Have you registered to be a bone marrow donor? John and I have. It's easy and painless to do.
Register to be donor and save a life.
Do you need non-judgemental sex education and/or advice?
Visit SFSI.org
(Or shoot me an e-mail. I'm SFSI certified educator. All questions will remain anonymous.)
I'm currently growing my hair for Locks of Love. Click below if you want to learn and join me.
Locks of Love
